Meet Some Joy-Hope Families

The Robbins

Lori and Chris Robbins have been married for 10 years and have been blessed with three children, Chris, Faith and Riley. Faith (left) and Riley (right) both suffered from Niemann Pick Syndrome Type A, which is a fatal genetic disease. Faith died on Feb 12, 2007. She was 19 months old. Riley died on April 22, 2013. He was two and a half. Lori and Chris and 6 year old Chris desperately need a chance to get away and make new memories together, and they would like to find some smiles in Disney. Joy-Hope will be sending them there very soon, and you can help. Click the link below...

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The Watson/Crump Family

Little Joviana “Jovi” Watson was born October 31, 2012. She has a twin sister Briella. Jovi contracted the flu and was not able to recover from the virus. Sweet Jovi died on January 6, 2013 at the age of two months. Jovi was a special baby girl who had an impact on those around her. Her mom, Shannon’s sentiments are touching, “although it was a short time my little angel left a big impression on a lot of people. She left her stamp, that’s for sure.” The Watson/Crump family, including Jovi's siblings Shilah (14), Jaden (9), and twin sister Briella...

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The Bartlinskis

Families are formed in many ways. For Ed and Ann Bartlinski their family grew not only through birth children but also through the blessing of adoption. Three years ago Ann and Ed were presented with an opportunity to further expand their family of 10; a beautiful little girl in China with many medical problems needed a loving family. They sat their children down for a family meeting. Knowing that she may not be with them for a long time, they all decided that they needed to bring Teresa home. They did just that in July of 2010. After almost three years of loving, caring, and praying...

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The Titters

Mandy, Josh, and Ryan (age 3 1/2) Titter travelled on a New Memory Making Getaway this past July to make new positive memories after the loss of their precious daughter/sister Caralynn Mary. Caralynn Mary Titter was welcomed into this world on November 24th, 2010 by her parents, Mandy and Josh and her older brother, Ryan. Their family was complete. And then the unthinkable happened. At barely 6 months of age, Cara was diagnosed with severe restrictive cardiomyopathy and her parents were told she would eventually need a heart transplant. “Eventually” seemed so far away until,...

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The Dunnes

Kristen, Kevin, Ryan (age 9), and Kate (age 7) Dunne said goodbye to their precious daughter/sister Molly this past May at age 7 after a year and a half battle with severe Pulmonary Hypertension. Joy-Hope sent Molly’s family on a New Memory Making Getaway in February. Before the trip Molly’s mother Kristen had this to say: “I think it would be nice to have a chance to make some good memories with our other two children. We are just devastated by Molly's loss and are trying to heal. I think making new memories is probably a way to do so.” Learn more about Molly’s...

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The Benton/Parkhurst Family

George Benton was in and out of the hospital most of his life. By 2 years of age he was admitted for a heart transplant and listed on January 6, 2012. His first month in the hospital was spent on the cardiac floor. While there he made friends very easily and brought fun and happiness to the floor.  On February 11, 2012 the family received the good news that there was a heart available. Surrounded by family and friends, George went into surgery late that afternoon. Sadly, George’s new heart did not agree with his little body.  George fought long and hard for 6 months battling infections,...

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The Naylors

Angelina Grace Naylor was born on March 20th, 2007 with Mosaic Trisomy 18- also called Edwards Syndrome- a very rare chromosomal condition that occurs when a baby has three #18 chromosomes instead of the normal two. T18 occurs in 1 out of every 5,000 births- 50% of babies carried to term will be still born, 55-65% of newborns with T18 die within the first week of life, 90% by 6 months of age, and 5-10% of infants with T18 survive past first year of life. Miraculously, Angelina lived until February 21, 2012, one month shy of her 5th birthday. Her short but inspiring life was filled with various...

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The Gloffs

Christopher, Kristen, and Christopher Gloff (age 6) lost their beautiful son/ brother Carter at 5 weeks old on February 6, 2012 due to complications that occurred at birth. Joy-Hope was honored to send them on a New Memory Making Disney Cruise Getaway in June. Read more below about their story in the words of Carter’s mother Kristen: “Carter William Gloff was born on December 31, 2011. Our family was filled with such joy and anticipation for his arrival, especially his big brother Christopher. Christopher had been asking for a sibling for years and had asked that we not find out...

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The Bourgealts

Deanna, Chip, and Cole (16 months) lost their precious daughter/ older sister Kaitlyn Kay at 2 1/2 on March 22nd to Niemann-Pick Disease (Type A). Niemann-Pick is a rare, fatal, genetic disease with no cure. In the words of her Mother Deanna on her blog: "Everywhere we went she got attention. Those big blue eyes, sweet dimpled smile, ringlets upon ringlets and giggles were all everyone could talk about when they met her. I believe that God created her perfectly, ringlets and all, for her purpose here on Earth- to get people’s attention!" Joy-Hope sent Deanna and Chip on a Carribean Cruise...

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The Matthews

Eli Seth Matthews: A Story of Bravery. From braveeli.com: "We wanted to tell you a story of bravery. Eli’s battle started on November 15, 2007 when he was diagnosed at the age of 6 with (ALL) Acute Lymphoblastic Leukemia, a form of Cancer. Eli reached remission and spent the next two years doing well, until he relapsed in October of 2009 in his right optic nerve.. "Eli then had eight rounds of radiation to both optic nerves to ensure the Leukemia would not spread or form in the left optic nerve, as well. Eli’s battle this time was a very difficult one. Eli lost his electrolyte panel...

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The Beisels

Jen, Jeff, and Wren (age 3 1/2) Beisel traveled on a New Memory Making Getaway to Orlando to help them heal after the loss of their precious baby Hudson Elise on March 11th, 2012. Read more about their brave little girl in the loving word of her mother Jen below.  “Hudson Elise Beisel was born a healthy, beautiful and happy baby on Friday, April 8, 2011. Hudson adored her big sister Wren (2 1/2) and spent most of her day watching, laughing, smiling and reaching for her. And oh how Wren loved her little sissy! My husband Jeff and myself, Jen, were so happy! Our dream of having a big,...

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The Winnes

Lydia Joy Winne was born to Jeff and Katie on December 23rd 2009. She was immediately taken to the NICU due to a failure to breathe on her own, the cause of which was a suspected brain trauma. After undergoing a tracheotomy and spending her first 3 and a half months in the NICU, Lydia would fight a 20 month courageous battle against seizures, hospitalizations, and many other obstacles. This battle ended on September 3rd, 2011 when she went home to be with Jesus. Lydia's parents have an amazing faith: "We wouldn't be able to have the peace we have now without...

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The Desroches

"(P.J.) blessed us with his beautiful smile and his bright loving blue eyes until the end... Although we don't understand why his life was so short, we thank God for the time he gave us to love such an amazing child." -Caroline and Pete Desroches. Peter Julian (P.J.) Marcel Desroches, precious son of Pete and Caroline, was diagnosed with Spinal Muscular Atrophy Type I (SMA I) at 7 months old. SMA I is a progressive genetic neuromuscular disorder affecting motor development and overall muscle tone. After being in and out of the hospital for several weeks, P.J. ended his fight on Tuesday, August...

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The Whittakers

Cody, Maria, and Isabella Whittaker (age 6) are the first family the Joy-Hope Foundation was able to send away on a new memory making getaway, thanks to the generous support of our donors. Cody and Maria are missionaries to Haiti. In early 2010 their 4 year old daughter, Susana, was diagnosed with stage 4 neuroblastoma cancer. After a long 10 month battle Susana went home to be with her savior on 2/11/11. At the end of March The Joy-Hope Foundation sent the Whittakers on a Caribean Cruise Getaway. Upon their return, Cody had this to say about their trip in his blog: "We just returned from the...

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Our Mission:
The Eric and Ava Benton Joy-Hope Foundation exists to support grieving families whose child died from terminal illness by providing a "New Memory Making Getaway", and to support research, education and awareness for Mitochondrial Diseases.